Strike out cancer at the cardinals game

Just a few nights ago, my parents, Andrew, and I headed to the ballpark to support not only the Cardinals, but to support Strike out Cancer

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In March, when I was diagnosed with kidney cancer, I knew that I wanted to do something. anything to try and make a difference.┬á still haven’t found that perfect match for me, but we did have tickets to THIS exact game.

See in December, we buy my dad tickets to the Cardinals game. And the game to raise awareness for cancer was apart of that package. So unknown to us, but this game was in that package. And I think, God knew we would need this night.

The night started off with a photo shoot

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(my dad and I)

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(my mom and I)

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Lot of Andrew and me pictures

And the night ended with a Cardinals win ­čÖé

6 months ago I had surgery, and it still seem unreal. You can find Strike Out Cancer tshirts here in all colors and from other pro baseball players

Question for you:

Do you have anyone close to was diagnosed with canner?

D you raise money for a certain cause that is close to you?

To be a survivor..

In the past few months, I have received SO much support, thoughts and prayers. And now even 2 months out, I was given a few gifts over the past week.

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My aunt, who is going through chemo and radiation for breast cancer, sent me this amazing ribbon pin.

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Orange for kidney cancer

She also sent some great info for meetings and groups for support. I definitely needed that!
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My sister in law picked up this while she and my brother were in the smoky mountain

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Cancer is a strong and scary word, but it CANNOT do so many things

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On the left, is the angel in my pocket that I received from my mom. I don’t think I will put it in my pocket, but maybe some place safe ­čÖé

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All of these gifts felt so special, and I hold them very close to my heart.┬áTo me, I have started to move on, so when I hear “how are you” or I receive a gift, it reminds me how much I have been through and how I want to live my life from now on. My goal is to be happy, in all aspects of my life. Maybe another post for another day…..haha

Question for you:
What do you do that makes you happy?

Who or what do you receive your support from?

 

Doc update: Post Kidney Cancer Surgery

Hi everyone! sorry I have been all over the place. I mean to blog everyday, but lately I have been trying other projects around the house. Pinterest is the devil when you are home and can’t do much. But this shows how I lose all my energy. I went to Target and the dollar store, was gone about an hour for organization supplies. I was exhausted the rest of the day! haha

Anyway, about the doctor. This past Tuesday I had an appointment with my surgeon. love him.

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He spent another 45 minutes with my mom and I answering questions.

looonnng list of questions
looonnng list of questions

He never made us feel like he was in a hurry, or that he didn’t want to be there (unlike a lot of docs) It was a great visit, with lots of good info!

  • Surgery went really well. Got the tumor out in one piece WAHOO
  • Other parts of my kidney were cancer free! WAHOO
  • Type of cancer I have is EXTREMELY rare in 20 year olds (almost unheard of)
  • My stage was 1Ta, which is the best you can have. WAHOO
  • Reoccurrence rate at 5 years is 5% for me WAHOO
  • I┬ácan lift over 10 lbs now!

Obviously, I knew a lot of these things after surgery a month ago, but the reoccurrence was new to me. I will get a CT scan in July to check my lungs and kidney again, and then depending on that, more scans in the future. Eventually, they should be every other year.

The one thing that bothered me was there wasn’t too much support for kidney cancer or renal cell carcinoma. I asked if they had races or organizations here in St Louis, and my doctor said not that he knew of ­čśŽ

My mom thinks I should start a race……

Well, I just wanted to give an update from my appointment, and hopefully my blog will be less medical here in the coming weeks haha. Here’s too a fast and smooth recovery ­čÖé

 

Question for you:

Have you ever raced for a cause?

-I also do the March of Dimes walk/run that raises money for premature babies. This year it is the day after my brothers wedding, so I’m not sure if I will be there

 

When the MRI results come back cancer

Well, I am sure that a lot of you can tell that the results for the MRI came back, and they weren’t the best. Soooo we rewind alittle…..

Monday

I arrived at work and was having a great morning. But I missed a call from my doctor, then played phone tag with his nurse several times. FINALLY, we caught up together. And I was thinking they would say “oh. it’s just a fat mass. NOOOOO BIGGIE”. Well, instead they told me it was papillary renal cell carcinoma. Cancer. Yep. The big C word.

After finding out the results, I pretty much had a break down and had to leave work. Luckily, I have amazing coworkers. I also was in contact with the GI nurse the whole morning, who went ABOVE and beyond her job to comfort and help me. She has set up an appointment with the renal surgeron the NEXT DAY.

Tuesday

From Monday till Tuesdays appointment, I was in such a fog. I guess that’s called denial? haha. My mom and I went to the doctor’s office (where I was the youngest person there by 30 years!) and talked with the doctor for almost an hour. He was so patient and kind. I never felt rushed with him, and his nurse was equally as awesome. I am so excited to have their support.

After the doctor’s appointment, we got to work. We drove to my grandparents and gave them the news. When my grandfather started tearing up, I almost lost it! Then my mom and I stayed on the phone and called family and friends. And the support was AMAZING! I will never be able to describe the love and prayers I received. It was incredible!

Wednesday

Today, I had to arrive at the hospital for a chest CT to make sure that the cancer was not found in  my lungs. And they LOOKED GOOD!!! Wahoo. This was defiantly something that I was extremely stressed about. The rest of the day was spent on the phone with work, leave papers, and family and friends. Surgery scheduled for Friday at 1pm.

Thursday

I had a ton of running around. I basically went to every store in St Louis in search of comfy clothes. and I bought ALL of them haha. I then had a two hour preop appointment. Where they took blood, did a physical, and asked lots of questions. Thank goodness that is done. Next up was packing, prepping for the surgery (more GI fun), and figuring the house and life out before I have surgery tomorrow! Well, then I received a call at 1pm that surgery was bumped up to 9am and I needed to be there at 7am. EEK!!! Bring on the stress. Luckily, I had a TO DO LIST and I just went after it.

So now I am ready to kick cancers butt. hahaha.

The type of cancer that they┬ábelieve I have, is 95% of that is not aggressive. Which is good.┬áThere is also┬á95% survival rate. Also REALLY good. This cancer is mostly found in adults┬áMUCH older than me. It is extremely rare to be found in your 20s. (lucky me) Mine is about the size of a ping pong ball that is grown into my kidney. So for surgery, I will just get that part of the kidney removed. So I will have one and a 1/2 kidneys starting tomorrow ­čÖé

Well here’s to kicking cancers butt!!! I am watching Ellen to get me in good spirits

I do have a caring bridge site that people can follow along, just email me if you would like to see it! My mom will be updating it tomorrow after surgery!

Thanks everyone for following along, and hopefully I will back sometime this week or next week ­čÖé